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New member - 3 years with neuropathy, looking for support

Neuropathy | Last Active: Jul 16 7:40pm | Replies (31)

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Thank you all so much for the warm welcome and sharing your experiences! This is exactly what I was hoping to find.

@lindabyrne38 - Your story gives me a lot of hope! 8 years and mostly managed now - that's incredible. I've been pretty sedentary since retiring, so your point about walking really hits home. I used to be on my feet all day as an electrician, but now I spend too much time in my recliner. The diet changes you mentioned are interesting too. I'll admit my eating habits haven't been great since retirement. Did you notice the improvement gradually or was there a turning point?

@daisy22 - I feel for you! It's frustrating when you're not getting the help you need. Have you considered getting a second opinion? A podiatrist might be worth trying, especially for the foot-specific symptoms. My neurologist was the one who diagnosed me, but it took a few visits to get there.

@elainestewart48 - I'm on gabapentin too (300mg twice daily). Like you said, it helps but doesn't solve everything. The burning is still there, especially at night. Have you tried any other approaches alongside the medication?

It's so encouraging to connect with people who truly understand what this is like. Looking forward to learning more from this community!

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Replies to "Thank you all so much for the warm welcome and sharing your experiences! This is exactly..."

You need to increase your dosage of gabapentin if 600mg a day isn't helping enough with the pain. I've been dealing with neuropathy in my feet for over a decade now, and am currently taking 3600mg a day. It dulls the pain enough to be tolerable, but it'll never go away.

I've seen a neurologist, orthopedist and had a nerve conduction study but the idiot who did the test didn't test at the left leg groin region where I had the anterior THA. Told me my nerve study was normal. All is normal!! I've tried the drugs but have such side effects that I won't take them. One mention of podiatrist. Does that really produce anything? Some write a podiatrist can't do anything but I feel I've tried everything else, why not a podiatrist, especially since my left ankle hurts as well. Now the numbness, tingling is going up into my calf from my foot and I get calf cramps. Any ideas?