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Neuroendocrine Tumors (NETs) | Last Active: Jul 26 7:28am | Replies (13)
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On 4 July 2023 I was diagnosed with stage 4 pNET. I had a Whipple on 31 October 2023 then spent over 4 weeks in hospital, to recover. I finally started monthly lanreotide injections in March of 2024 however progression continues unabated. I am STILL waiting for PRRT to come to my city in Canada (I hope I last that long). For context, I live in Calgary, Alberta, Canada.
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They have PRRT in Edmonton I think. I would make the trip as its only for one day every seven weeks or so.
Where I live (Michigan) PRRT was available nearby but there was a waiting list. In the meantime they gave me chemo every other week and started PRRT about three months later.