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DiscussionNew member - 3 years with neuropathy, looking for support
Neuropathy | Last Active: Jul 16 7:40pm | Replies (31)Comment receiving replies
Replies to "I need help!! My primary said I don't have PN but never tested anything. She told..."
You need to be seen by a neurologist, a podiatrist doesn't treat or test patients with possible neuropathy symptoms. It took 3 neurologists almost 10 years to finally conclude that I have Idiopathic Poly Neuropathy in my feet.
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You would really benefit from a good neurologist who would do EMG testing and also refer you for vascular ultrasound to rule out vascular issues. Probably you will end up like most of us on this site...no cause, no treatment, no prognosis. It is a very debilitating disease with unpredictable outcomes. Lots of scam providers of equipment, supplements, etc. Mostly nothing is that helpful. there is a lot of research going on because Big Pharm knows they would make a killing if a treatment were identified. Keep moving, especially impact; walking aerobics, zumba, cardio...Make sure your Vitamin B 6 is not out of range. Ask neurologist about the other meds you take. Statins can cause neuropathy. So can Hydroxychloroquine if you take, like I did for years, for auto immune disease. Many of us also have auto immune conditions; another morass of poor or no treatment and/or diagnoses. I stopped both of those meds. I wish i could be more encouraging. Maintain your best health for eating, exercise and routine blood work. A rheumatologist might also be helpful. They seem to be more sympathetic to their patients and helping them. Neurologists tend to be busy with Parkinsons, Alzheimers and ALS patients.