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New member - 3 years with neuropathy, looking for support

Neuropathy | Last Active: Jul 16 7:40pm | Replies (31)

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Hi Mike, I don't know what will work for you but I can tell you a little about my journey with neuropathy. Ive had for 8 years; although now it is mostly managed. I have never found the cause. I have small/single fiber neuropathy that was diagnosed by my foot doctor. I also went to a neurologist for further testing where I didn't find out anything more. In the last 3 years, I have researched and changed my diet as I read that carbs and sugar make it worse. I have also forced myself to walk a lot more even when my feet hurt. I joined a walking meetup group which helped with accountability. I had surgery for a separate issue which then put me on a low fat diet. In the process I lost 50 pounds. Walking and weight loss were the big treatments for me. I never had diabetes or pre diabetes. Only thing maybe is that I had thyroid cancer 20 years ago so could be cumulative effects of medication or radiation treatment that i had. It could also be the additives from all the bad food choices I used to make. Now I only eat whole foods, vegetables, chicken. I find if I become a couch potato or get the flu and am inactive for days/weeks the neuropathy comes back. It is good to find the underlying cause but even if you don't find it (many of us don't), there are other things you can do to get relief. I wish you the best and hope you get some relief.

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Replies to "Hi Mike, I don't know what will work for you but I can tell you a..."

I need help!! My primary said I don't have PN but never tested anything. She told me I have radiculopathy and never did anything. No referrals or tests. Could a podiatrist help me with foot pain, numbness, cold feet, tingling, hard to find shoes that work. I've had these symptoms for 3+ years and will try anything to treat this. Thanks.

@lindabyrne38 You have done well in your neuropathy journey. Your walking experience is very interesting. The bottoms of my feet are so painful that walking becomes very tortuous. If I knew that more walking would help, I would walk until my feet told me to stop, then repeat the next day. When I do walk about 4000 steps in a day, the next day is even more painful overall(my neuropathy causes pain from my lower back down to the tips of my toes, usually a seven to an eight daily). I guess my real question is, after you started walking, was it a challenge to continue? Did continuing ultimately help with the pain in your feet? I hope I haven't rambled to much.