Hesitant to begin drug treatment for my osteoporosis

Posted by artistel81 @artistel81, May 14, 2024

Hello! My first post here as a new member. I am an active 69 year old female who was diagnosed many years ago with osteopenia but now have osteoporosis. When diagnosed with osteopenia I gave several drugs a try. I had side effects from all the oral choices I took, and when giving myself Forteo shots, broke out in hives all over my body. After that, I decided I would take my chances and go the natural route to keep my bones healthy with diet, consistent exercise and Calcium/Vitamin supplements. Fast forward to present time my last bone density scan was worrisome, (a -4,4 T score in my spine). An endocrinologist strongly suggested treatment, (shots or infusions), but I still fear side effects. I am currently trying to educate and empower myself by researching all options. I am already a bit overwhelmed with so many differing opinions. Drugs or no drugs?! The possible serious side effects of drug treatment still frighten me. Has anyone here diagnosed with more advanced osteoporosis, remained fracture free? Am I at such a high risk that I’m doomed without drug treatment? Thank you in advance for any advice, experiences, etc.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I wish you well. For some reason I feel better knowing that there are others like me who aren’t going to continue with meds. I admire those who can do it but it’s not for me. I
Just mad that I started them st all.

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Profile picture for mic1953 @mic1953

Hello, I was also diagnosed with osteoporosis but I never saw the report that indicates where exactly (spine, hips, etc) I am most vulnerable. I saw an osteoporosis specialist and he suggested Evenity injections once a month for a year.

Upon researching this, I gathered that if this drug does in fact help my situation, after a year you no longer take it and the benefits stop as well. So, then it’s on to another drug with different side effects. And so on and so on.

I will take my chances without this uncertain drug therapy. I will take supplements and be very careful not to fall or do anything to break any bones.

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mic1953 you might benefit from finding out more about your osteo, esp your T-scores, so you can make informed decisions about treatment. You might be fine without a Rx medication - most of us know lots of people in our age range 😱 who probably have osteoporosis and have not been diagnosed, and who manage fine as long as they don't fall. But you've crossed the line where you can use the excuse that you didn't know. You should look into the Pro's as much as the Con's. IMO. Good luck whichever way you go.

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Profile picture for Lynn Sheri @lynnsheri

Hello @nannygoat5

Thank you for mentioning Oxalates.
I have researched Oxalates and I'm still at it. It appears almost everything I consume inhibits calcium absorption...next step is a spread sheet. In my opinion with my basic knowledge on the topic of absorption... timing is everything.

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Another school of thought - more than Oxalates, it is that high percentages of unprotected supplement minerals are crystalizing in the small intestines and becoming useless.

I learned this from a research and development division of a wellness manufacturer who founded a patented fix (two in fact) to the problem that caused up to ten times higher absorption of minerals.

You researchers will like reading about this - search for Oligo Technology introduced in 2008. Trust detail: when they discovered a fix, they threw away over $10 million supplements saying they could not in integrity sell a problem when there was a fix for it. (They had tested 250 name brand supplements and all had this crystalizing problem.)

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Profile picture for nannygoat5 @nannygoat5

I know! I finally decided to just stick with dairy lol!

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I was told forty years ago that enzymes to digest dairy fade around age 16 and that dairy becomes an empty calorie food for adults (and mucus trigger for many).

I wonder if that is now a debunked myth?

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Profile picture for joyboudreau @joyboudreau

I was told forty years ago that enzymes to digest dairy fade around age 16 and that dairy becomes an empty calorie food for adults (and mucus trigger for many).

I wonder if that is now a debunked myth?

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That doesn't make sense to me at all. I have the equivalent of two glasses a day. If it couldn't be digested, wouldn't I have a problem? Isn't that literally what lactose intolerance is - something I certainly don't have?

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Profile picture for joyboudreau @joyboudreau

I was told forty years ago that enzymes to digest dairy fade around age 16 and that dairy becomes an empty calorie food for adults (and mucus trigger for many).

I wonder if that is now a debunked myth?

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I think that’s not true! My endo and my internal MD both aside dairy is best (and it’s better to eat and drink dairy than take vitamins

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Profile picture for grammy9 @grammy9

Oh my that does seem like a bad dexa scan number. May I ask what your height and weight is? I am 4 11 and weigh 125. I also question my numbers because of being petite but doctors don't agree.

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Curious on the answer too. I'm 5'5" 115pds

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Profile picture for lolamarie @lolamarie

windyshores....thank you for your response...no, you have not offended me but I very much appreciate your input. I feel for you because I can identify with much of what you have had to go through although our experiences are different. Honestly, when I first read your reply and you said you were able to take Tymlos, I had hope....a big hope....but it didn't last, only briefly. I am very very very scared as I feel if Tymlos could kill me, it will.

I really don't know what I will do right now as I'm frozen with fear....either way scared to take the drugs and also scared not to take drugs. Thank you, even though I'm too scared to act on it right now, but you've given me some hope.................

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I am 72 and am. 4.3 taking Tymlos injections daily my fractures and broken bones occurred prior to finding out I had osteoporosis.
I have not had any since I started Tymlos 6 months ago, no side effects that are effecting my life. Some minor ones but I can live with them if they medicine is doing it’s job. I have played Pickleball, done water aerobics and I am careful but not injured myself or had problems. I also walk my dog regularly when weather permits. I live in Arizona so not walking right now🥵 too hot. I also take vitamins, changed my diet as suggested and in general just more careful. I think you can get overwhelmed listening to the complaining but I have not and I do have other health issues. Who at this age doesn’t keep in contact with your doctor and take the meds don’t wait until it’s too late. Good luck!

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Profile picture for joyboudreau @joyboudreau

I was told forty years ago that enzymes to digest dairy fade around age 16 and that dairy becomes an empty calorie food for adults (and mucus trigger for many).

I wonder if that is now a debunked myth?

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Hope this isn't true as I drink 4 or 5 glasses of milk each day and consume countless ounces of cheese as well. I don't do water unless I'm hiking.

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Profile picture for njx58 @njx58

That doesn't make sense to me at all. I have the equivalent of two glasses a day. If it couldn't be digested, wouldn't I have a problem? Isn't that literally what lactose intolerance is - something I certainly don't have?

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Lactose intolerance doesn’t prevent digestion-in fact aids it somewhat. But people who have lost significant lactase have undesirable actions with lactose and it is not worth using dairy.

So a little digging shows that the doctor was only partially right.

So what is funny - he made me stop my daily milk and 40 years later, I discovered I could not have dairy even in ice cream. Almost over night. Took me a long time to lose my lactase. Ha. (Really think a stressed gut was the problem, and the gut has a memory. IDK)

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