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Newly diagnosed with 3.9cm ascending aorta

Aortic Aneurysms | Last Active: Jul 29, 2025 | Replies (29)

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Profile picture for GratefulEveryDay @GratefulEveryDay

Mine was diagnosed in 2019 at 3.9cm. I get 6mth-yrly CTs or ultrasounds. Now it is 4.3 but I do have a connective tissue after doing a gene study- the LOX defect, similar to others such as Marfans gene defect. Three other relatives also have the same, and my mom passed from aortic dissection in '02, at age 66- I'm 68 now- so she never knew of the defect. So we watch it, and live life! (Due to the LOX loose elasticity and lack of collagen, I also have brain aneurysm, and renal and iliac, but they are just monitored, also.) I have a CT scan for aorta in Aug, which is past due, it's been a yr. Good luck to you! Hoping yours is slow growing as well. I feel that even if it's 4.5, Mayo will no do surgery. But rupture with mom was sudden death sentence, just 5 min. But a small percentage can make it to a hospital, if the leak or tear is slow...

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Replies to "Mine was diagnosed in 2019 at 3.9cm. I get 6mth-yrly CTs or ultrasounds. Now it is..."

I’m so sorry to hear about your mother. Especially since it happened so quickly.
I agree with living life!
Did you have any symptoms of LOX prior to this diagnosis? I’m trying to figure out what could cause me to have one so young (I’m 46), but when I looked at symptoms of the various disorders, I don’t think I have any of them.