Hello @kathyzee and welcome to Connect. I can understand your concern and wanting to connect with others who have a similar diagnosis. Here is a list of other discussion groups where atypical lung NETs are mentioned: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=atypical+lung+NETs#discussion-listview

There is also a discussion on spinal NETs. Here is the link to that group where you can post, ask questions, or make comments. Here is the link:https://connect.mayoclinic.org/discussion/net-in-the-spine/?pg=2#comment-877805

Is this a recent diagnosis for you? What treatments, other than the surgery, have you had?