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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 28 minutes ago | Replies (1598)

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @bons64 - welcome to Mayo Clinic Connect. That is unfortunate that your tortuous colon has had a negative impact on your life and nobody ever said anything to you about it. I, too, learned I had this condition through my colonoscopy results. I assumed that no one talked to me about it because I'd never mentioned any symptoms, and I learned later when I did ask about it that that was the case. Evidently everyone with a tortuous colon does not experience symptoms from it. I'm truly sorry that in your case, where you were vastly affected by the tortuous colon, no one said something about it to you.

Trying a diet of really bland foods for awhile sounds wise, and I'm glad things are at least better, if not perfect.

Did any of the medications or other treatments you've had in the past help your symptoms at all? If so, how did they help? When is your new appointment with the MD?

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Replies to "Hi, @bons64 - welcome to Mayo Clinic Connect. That is unfortunate that your tortuous colon has..."

Hi! I didn’t mention symptoms to my MD possibly that would indicate anything other than what I was diagnosed with, which was Chorinc Ideopathic Constipation. It seemed in the beginning only Miralax worked, then the dr prescribed the Linzess which worked for about one and a half years. It ruled my mornings though!! I would have to drink such a huge amount of water to even get the meds to work. You couldn’t eat for 1/2 hour after the pill. The whole process probably took around 2 hours. I would use OTC colon cleansers that worked and then just recently stopped. Enemas forget it were pretty useless. Several times I used magnesium citrate, but that stopped working as well. I have also ended up in the ER for the constipation issue. I just ended up piling one thing on another just for any relief. Well this all backfired and I was then diagnosed with hyponatremia or low sodium and many of the symptoms that go with it. Nobody not even me put this all together and now it makes so much sense! What all this was doing to my electrolyte balance. The last straw was the Enulose. Worked great for about 3 days then nothing. Prescribed me so many bottles that are now just a waste. This kind of treatment is not, I guess, what a tortuous colon needs. I have another appointment scheduled with an MD actually the one who did my last colonoscopy. That appointment is 8/1. There is definitely a silver lining though. Stopping the meds and any aggravating foods has significantly reduced the inflammation and bloating! As if this Friday I have not used any meds.