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Deciding to discontinue meds

MAC & Bronchiectasis | Last Active: Jul 12, 2025 | Replies (17)

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Profile picture for Sue, Volunteer Mentor @sueinmn

In addition to quality of life being key, it is important to remember that there are more ways to "treat" MAC/NTM than antibiotics.

"Watch and wait" is a very valid treatment plan IF you include daily/twice daily airway clearance like you are planning.

Like @mariegrace I stopped antibiotics over 5 years ago while still having positive cultures. So far, so good - only a few exacerbations, stable CT, good lung function.

Good luck with your watchful plan - stay vigilant.

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Replies to "In addition to quality of life being key, it is important to remember that there are..."

Thank you for the feedback Sue. Not a trade off per se, but doing 2x daily airway clearance is so much more manageable than the big 3. I think my primary concern is antibiotic resistance should there be a recurrence so hopefully I can keep it at bay.

Thank you!

Hi Sue,
Are your exacerbations due to MAC, or other causes? Have you been tested lately to see if you are still positive for MAC? Also, how often do you get CT's?
You're very encouraging!
Thank you!
Kathy