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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 24 11:10am | Replies (111)

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Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for 2 yrs i can’t get past 7 mg each time I go to 6 mg my pressure drops and I feel terrible ..
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I hate to complain too much about prednisone. It did spare me from having too much pain.

I had a problem with feeling terrible when I reached 7 mg. My belief was that it was a combination of both a low cortisol level and symptoms of PMR returning.

I didn't have the problem when Actemra controlled my PMR symptoms but I felt terrible when I reached 3 mg. That was a low enough dose of Prednisone for my cortisol level to be checked. My cortisol level was low so I needed to stay on 3 mg for 6 months.

Low blood pressure was never a problem until I was able to get off Prednisone. When I was taking Prednisone, my blood pressure would sometimes be higher than 200/100 but not all the time. Three blood pressure medications were needed to control my "labile" blood pressure.

After Prednisone was stopped my blood pressure didn't drop all of a sudden but it gradually decreased over time. One by one my blood pressure medications were stopped. Now my blood pressure is normal without any blood pressure medications.

I have learned to appreciate everything that cortisol regulates in the body. It regulates inflammation, metabolism and so much more. When I was taking Prednisone ... it was impossible for me to keep everything regulated.

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Replies to "Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for..."

Thxs Mike. The first year I was on it seemed great.. I was happy to be pain free and be able to move again ..was on 25 but from 10 mg down it has been a struggle to go lower. Got to 6 but at the moment at 7. It does control so many things in your body and it’s a miracle drug but long term not so good. I have fibromyalgia too so. I never know what’s going on with my body. But Thxs for the info. there’s hope I’ll get off of it one of these days ..