← Return to Effectively- post-neuropathy pain after shingles on your head

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Profile picture for kathleenintexas @kathleenintexas

My case is similar to yours. I developed trigeminal neuralgia after a case of shingles on the scalp and face (including eye) four months ago. I was having agonizing attacks of pain in my eye and scalp until the dr increased the dosage of gabapentin to 1800mg a day. The literature says the pain is the worst pain known to humanity. I concur. When it hit I fell to my knees screaming and crying. It felt like someone was pressing a hot iron against my face and scalp. Though the gabapentin stopped those attacks, the opthalmic part of the trigeminal nerve is still active and it flares several times a day where it feels like it is moving in my scalp. Thankfully these flares are painless. I also have that intense, almost unbearable itching of my lower eyelid and the part between my eyebrow and eyelid is very painful to the touch and sometimes gets red hot. I will look into the things you have mentioned that help you and thank you! I only have the gabapentin and it looks like it may be a long haul.

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Replies to "My case is similar to yours. I developed trigeminal neuralgia after a case of shingles on..."

@kathleenintexas oh girl. I have the same. I am 2 months in. They switched me to lyrica from gabapentin. It’s supposed to be stronger but this pain is never fully gone. Still have stiffness in forehead where shingles was and the scalp. Did the 1800 gabapentin get rid of pain completely ?