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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Oct 16 6:54am | Replies (1606)

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How! New here. I was informed, only by reading my colonoscopy results that I have a tortuous colon. Nobody has ever said anything about this to me, including numerous Gastro doctors. I didn’t know it could have such an negative impact on my life. I’ve gone for years using laxatives, prescription medications like Linzess, enemas, colon cleansers, and the last prescription I got was for Enulose which made my symptoms 1000 times worse. I’ve since stopped everything and am doing a gut healing reset with really bland foods. It’s not perfect, but it’s better. I was supposed to see a PA tomorrow to discuss testing for bacteria like SIB, but they canceled it saying that I need to see an MD. I’ve already seen many doctors and a colonoscopy 6 years ago which was perfect. Such a big part of me is angry that nobody explained this to me. They just kept throwing meds at me. I read a comment from somebody else on here who said if one more doctor asked me if I eat enough fiber and drink enough water I was going to scream as well! This is an anatomical problem that nobody has explained to me until I started looking this up on ChatGPT.

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Replies to "How! New here. I was informed, only by reading my colonoscopy results that I have a..."

Hi, @bons64 - welcome to Mayo Clinic Connect. That is unfortunate that your tortuous colon has had a negative impact on your life and nobody ever said anything to you about it. I, too, learned I had this condition through my colonoscopy results. I assumed that no one talked to me about it because I'd never mentioned any symptoms, and I learned later when I did ask about it that that was the case. Evidently everyone with a tortuous colon does not experience symptoms from it. I'm truly sorry that in your case, where you were vastly affected by the tortuous colon, no one said something about it to you.

Trying a diet of really bland foods for awhile sounds wise, and I'm glad things are at least better, if not perfect.

Did any of the medications or other treatments you've had in the past help your symptoms at all? If so, how did they help? When is your new appointment with the MD?