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Infusion vs injection of tocilizumab (Actmera)

Polymyalgia Rheumatica (PMR) | Last Active: Jul 20 1:07pm | Replies (23)
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Great info, thanks!
Do most people need to stay on this indefinitely, or is the general plan to get the PMR under control and then once you are in remission you need to restart only if you get a flare or new symptom?

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Replies to "Great info, thanks! Do most people need to stay on this indefinitely, or is the general..."
Mike | @dadcue | Jul 8 7:01pm

I think a lot of people are able to stop Actemra and still have a "sustained remission." I'm not one of those people and have been on Actemra for more than 6 years. Actemra was stopped a couple of times for different reasons --- what happened to me after Actemra was stopped wasn't good.

My rheumatologist has no plan to stop Actemra as long as it continues to work. I'm glad I don't live in the UK. People in the UK are lucky if they can get Actemra and for GCA only. The medical system in the UK restricts Actemra and limits its use to only one year. I hope that restriction changes for UK citizens.

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