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Newly diagnosed and confused over treatment for lichen sclerosus
Autoimmune Diseases | Last Active: 17 hours ago | Replies (116)Comment receiving replies
I have also had treatments at Coyle Institute in Pensacola, FL that helped tremendously. I live in AZ, so have to travel there, but Dr Coyle’s Tulip Procedure halts MY LS, removed scarring from over my clitoris, reopened fused areas that had nearly closed over my urethra. He talks to my husband about the importance of maintaining our intimacy via other methods.
The LS always has returned, but Tulip Procedure gives me great relief for a year in between treatments. I’m now using Ozonated Coconut Oil since my last procedure, and am lesion free for the past 4 months.
(I tried doctors in Tucson, Phoenix, Scottsdale, LA, and San Diego.)
Replies to "I have also had treatments at Coyle Institute in Pensacola, FL that helped tremendously. I live..."
I also was diagnosed years ago and tired of using steroid creams. My gynecologist recommended coconut oil and wipes and it definitely helped. I' be used a coconut cream and wipes for 10 years and have had no flare ups or discomfort. Easy solution and worth a try.
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You are very brave indeed, sending you lots of hugs. Unfortunately I am unable to order the cream you recommended as they don't deliver to Ireland which is where I am based, however I have tried organic coconut cream before and it didn't work. I struggle with the dryness and itching in my groin area. Thankfully everything else in that region is fine, but the itching is intolerable at times and I find most creams, organic or holistic or herbal all work for a while and the immune symptom which is very clever, finds a way around the creams, that's why the steroid cream works as it tricks the immune symptom. I hope some day an holistic solution is found.