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← Return to Negative Turn in a Long Journey
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Negative Turn in a Long Journey
Pancreatic Cancer | Last Active: Nov 13, 2025 | Replies (106)Comment receiving replies
Good advice @gracect. MSK would be my choice also, if I lived on the east coast. Did your husband have a targeted radiation like MRIdean, or the generalized radiation? Did he avoid neuropathy being on the gemabraxane, and do you know and are willing to share his mutations? Lots of questions, but 4 years on that chemo regimen is incredible! I think @199 has been on that long term, also.
Replies to "Good advice @gracect. MSK would be my choice also, if I lived on the east coast...."
He had targeted radiation Monday through Friday for 3 straight weeks. Caused so much fatigue that he was looking forward to getting back on chemo. Never had neuropathy yet. Having the Gemabraxane every 2 weeks vs 3 on, one off was a game changer as far as quality of life. They switched to every other because of low platelets. He gets a romaplastin shot every week now to enable the every two week chemo. He didn’t need the shots nearly as often prior to radiation.
He has KRAS G12V
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I will celebrate 3 years on Abraxane & Gemczar on 22 July. 74 total treatments with 4 months off so 44/now +30 on the 17th of July 🙂 I wish I had known about acupuncture when I first started chemo. I think it helps my neuropathy but wonder if it would be much less if I had acupunctures early on. I have the KRAS G12D and TP53 mutations. My latest scan was "stable" and my CA19-9 was 49.5.