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Profile picture for diamonddog @diamonddog

Thank you so much. Yes, my lungs are a tiny bit wonky from calcified granulomas - noted in my early 20s when I was being scanned all over for government service. I haven't noted any ill effects but it did give me pause at the time because I had no idea what might have happened when I was a child to develop that. I appreciate all of this!!!

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Replies to "Thank you so much. Yes, my lungs are a tiny bit wonky from calcified granulomas -..."

@diamonddog
Do you have any respiratory symptoms from the granulomas? Are they slowly growing by any chance?

I have over 50 lung nodules that were discovered on a CT in 2008. I had an unexplained chronic cough every hour of the day since about 1990. It took 12 years to diagnose the nodules with so many specialists of all kinds baffled. Many of them guessed they were residual from a past infection. That never made sense to me since they were very very slowly growing. Turns out I have a super rare condition called DIPNECH. Only about 300 documented cases in the world but they believe it is underdiagnosed because doctors aren’t familiar with it. It’s called DIPNECH. Google it just in case. I’ve been taking octreotide injections for 4 years and they stopped my cough. Life changing!