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Y90 AND Captem Combo
Pnets KI67 25%. My husband had 3 captems cycles. The last cycle had toxicity and became sick. Anyone experience Y90 procedure for Pnets mets to the liver? I have read many net patients use Captem to shrink tumors for a few cycles. Not sure why the Dr wants to dive into Y90 already. Unless it is because my husband got sick the last cycle of Captem. But didn't use anti nausea meds either, unfortunately. Anyone have good results with Y90 and was successful?
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Yes, since this has happened he actually took a leave of absence from work right now. If he had a desk type job maybe he could keep working, but it is too much. Now it is summer and it is alot of the time in the 90's here. I hate to be selfish, but I wonder if we will ever have fun again. This is really the most I have seen him sit EVER. Thanks for listening.
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2 ReactionsThat is really amazing and promising that it has stayed stable or away from the liver so many years. Thanks for all your input on this.
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2 ReactionsI know this wasn't directed at me, but after 17 years I can tell you that we have had a ton of fun over that time. Hang in there!! My husband did go on disability about 3 years into this because he was so fatigued and it was tough to handle all the time off for appointments while trying to hold down a stressful and long hours job.
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4 Reactions@laree
That is a fair question on fun. I have asked myself that question many times especially on a holiday weekend like this. What would a typical 4th of July fun weekend look like for you folks? Did you miss out on something you really enjoy? Did you appreciate anything a little differently this year?
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3 ReactionsA lot if times we go to the local mtns for the holiday. But I went last year and there was a heat wave so that year was also different. My Mom said she didn't feel like it was the 4th. It was quiet. We saw some fireworks in the city, my son and I. Just hanging near home and rushing around less I would say. Some boutique thrift store shopping which I would also do in the mtns. I am really trying to do things as normal as possible. I am concerned how the Y90 cycles will land. August there is a bday and October my husband's bday and our Anniversary. Maybe we can navigate around it somehow.
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2 ReactionsNo problem! There has to be more fun in the future!
Do you mind explaining why other net specialists didn't want to start treatment? Was it the tumor burden? Yes, 3 years is a long time. I think for our area disability would only be a year .....
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2 ReactionsOnly one specialist had that opinion. I have no idea why. We had done enough research to know there were good viable options. But it was in 2010 when there wasn't as much knowledge even among specialists.
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3 ReactionsYes, I am hoping there are a lot more options since Steve Jobs story. But we really don't know exactly what happened. I totally remember hearing about him. So successful I had thought and this is what happened to him. Funny or not funny, here we are. I remember that day like yesterday.
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2 ReactionsSteve Jobs was originally treated at Stanford (where my husband had his pancreas surgery) but then went on a holistic approach. You just never know.
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2 ReactionsWhat does the trial involve? Ive had both Y90 and CAPTEM. Curious about what the trial treatment plan involves.
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