I've been on Orgovyx 2 1/2 yrs. My doctors want me to come off it.

I've had surgery, salvage pelvic radiation, and ADT (Orgovyx). PSA < 0.01 for over 2 years (since radiation + starting ADT). I was stage 4a, Gleason 9, Decipher .99 so aggressive. I've got a small lung nodule < 6mm and stable. Probably not cancer but I'm afraid if I stop the Orgovyx and it is cancer that it might start to increase.

I've experienced muscle weakness, joint pain, trouble sleeping, and no energy, overall tiredness-- don't know if this is due to the Orgovyx or not.

I'm scared to stop taking it. I don't mind the ADT side effects although it's been getting worse. I suppose my doctors are worried about possibly more serious SE's like bone loss/weakness and heart problems. But all this sounds better than my cancer getting worse.

Drs apparently just think I've been on it long enough and I suppose I'll become CR eventually? Don't want that. But, it's scary to stop, not knowing what might happen.