@cehunt57 Here's an update.
I am a retired LPN, not an RN, but have a background in nutrition and in chemistry.
The cookbook recipes now are outdated as manufacturers and food producers frequently change amounts, nutritional values, and ingredients. However, most of the essay portion of the cookbook (such as corn, squash, and beans equalling a complete protein or using unbleached flour rather than overprocessed white flour or potassium leaching of potatoes) remains accurate. In the interest of accuracy regarding the recipe values themselves, I always caution people when they refer to those early recipes to bear in mind that those values have changed over time and to get the latest nutrient value information always read labels and in some cases even contact the manufacturer for the latest values in a product.
On a personal level, using my own accurate-at-the-time recipes got me off dialysis. I became a vegetarian and except for eggs and extremely limited dairy cooked in foods like bread, I followed a vegan diet with the result that for several years I remained in CKD Stage 3a. As a diabetic with CKD I saw that a diabetic food list/regimen in some ways conflicted with a food list/regimen for CKD and I tended to rely on the renal diet more than on a diabetic diet.
Over time, though, diabetes created quite a bit of nerve damage and I developed gastroparesis, slow stomach emptying, and often could not eat well. I had weighed about 289 prior to that but the nausea and poor appetite and swallowing difficulties resulted in almost no insulin required and contributed to my losing a total of close to 150 pounds. I also lost muscle mass and wound up in the hospital several times because I couldn't meet nutritional needs.
Recently I had laser surgery on a diverticulum associated with my pharynx and affecting the esophagus and now am on a full liquid diet with very soft foods that don't need to be chewed (potassium-leached mashed potatoes, for example, soups with very mushy potato cubes or pureed squash.) I'm slowly losing ground even though I've stayed in CKD Stage3b and use very little insulin. Part of my weakness and resultant need for someone to come in 5 days a week and do cleaning and cooking is also due to comorbidities such as CHF, COPD, musulo-skeletal deterioration, and so forth.
Although I'm not ready for it yet, my PCP and I are exploring Hospice options so if and when the time comes we won't have to rush to find appropriate end of life care.
Meanwhile, I'm still here and post in How Ablout A Laugh in the Just Want To Talk thread.
Thank you for remembering me. I hope you're doing well. And please remind everyone who reads those old recipes to read labels for updated ingredients and nutritional values and ingredients.
@kamama94 thanks for responding. I’m sorry it has taken me so long to reply. I’m sorry I messed up your nursing credentials. I’m impressed with your background in nutrition, chemistry and of course your cookbook. You responsibly have always cautioned folks to check nutrient information, labels and manufacturers.
When I first “met” you we shared CKD, diabetes and gastroparesis . I still have all that. The CKD is stable. The diabetes is the most challenging and I’m now using high tech devices (CGM & insulin pump). The gastroparesis is a fairly well controlled history. You mentioned “laser surgery on a diverticulum associated with the pharynx and affecting the esophagus”. Are there more than one diverticuli in the body? I was diagnosed with diverticulitis which to my understanding is at the lower end of the GI system. It is challenging because it prefers being fed the opposite of gastroparesis at the top end of the GI system. Gastroparesis is frequent, small, low fiber snack like meals. Diverticulitis responds well to high fiber! My primary said to experiment with small portions of foods to find what works best for me! What am I complaining for? At least it is real solid food and not full liquids / soft foods like you have to contend with. WOW no wonder you lost a lot of weight! Does not sound healthy and I’m so sorry for your hospitalizations, weakness, the need for outside help and “losing ground”. I admire you and think the world of you! I’m a bit younger than you and I guess in better shape. If I lived closer I would come and cook, clean, shop, do laundry….etc. for you and just hang out. We might enjoy one another’s company. At the very least we could commiserate about health issues.
I definitely remember you. My thoughts and prayers go with you as you and your PCP explore Hospice options and end of life care. We are both “still here”. I will be sure to venture over to visit “How About a Laugh” & “Just Want To Talk”.