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Profile picture for 2thfairy @2thfairy

I’ve had LS for over 20 years. The newer thinking is that steroid creams only dry the area out more, thin the tissue, and cause further cracks and pain. My Urogynocologist has now recommended Ozonated Coconut Oil and I haven’t had a lesion since February, using it twice daily, gently massaging it into the entire area that’s normally affected. (I just buy it on Amazon. It smells of Ozone, but it’s so helpful, who cares?)
I wish I had had this in the initial phase.
Stay on this forum! It can be so helpful to know others who are dealing with your same issues!

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Replies to "I’ve had LS for over 20 years. The newer thinking is that steroid creams only dry..."

That's very helpful thank you for sharing. I have had LS for 12 years and have tried everything and was just about to go back to steroid cream which I didn't want to do, and I then see your message, so shall try this and hopefully can have an effect.

@2thfairy - I just posted, but am looking back at previous posts, and see yours. I will bring this up with my gynecologic oncologist via their hospital portal messaging center to see what she thinks.

Wonderful to hear you've had no further lesions! Thank you.