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Frustrated and confused about my meningioma & an Update

Brain Tumor | Last Active: 8 hours ago | Replies (48)

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Sorry you are going through all this. There ARE doctors who will take out the meningioma, even if not growing, because you are symptomatic. My suggestion is to see a neurosurgeon quickly, preferably at an academic institution. I went straight from the MRI to neurosurgeons- have not seen a neurologist at all. I saw 6 neurosurgeons and only one wanted to wait for a follow up scan in 3 mo. The others were prepared to remove it or radiate it quickly, depending on my preference. And mine is much smaller than yours. I am also symptomatic like you, and that makes a big difference. Agree that otherwise docs may not want to operate. Hope that’s helpful perspective.

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Replies to "Sorry you are going through all this. There ARE doctors who will take out the meningioma,..."

I saw a neurosurgeon today and he said the same thing…..watch and wait. He said that he believes that I have a non-epileptic seizure disorder and the pain that I’m feeling in my head is still migraines. I have a follow up with the neurologist in September so I guess I’ll just wait and see what he has to say. In the meantime they are asking for MRI of my neck and low back for other issues

Mine was a 3 but was putting off systems, it was removed!

You can’t see a neurosurgeon around here without a referral, it’s awful. I wish it were different.