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Liver Diseases Support Group: Let’s connect
Liver Diseases | Last Active: Oct 28 11:04am | Replies (33)Comment receiving replies
Hi. My name is Laura. Have recently been diagnosed with severe fatty liver, primary biliary cholangitis and autoimmune hepatitis. I also have an autoimmune disease for 18+ years called Cogans Syndrome that affects my vision hearing and balance. Currently am on 32mg methylprednisolone which covers the AI and Cogans, and Ursodiol for the PBC. They are trying to add Azathioprine but had previous side effect of leukocytosis. They are running some blood tests that will give them better information on my body’s ability to metabolize it.
This liver issue is all new to me. Would love to connect with others and hear their journey
Replies to "Hi. My name is Laura. Have recently been diagnosed with severe fatty liver, primary biliary cholangitis..."
@lmpa65, my name is Julie. I was diagnosed with pbc in June. I also have fatty liver disease that comes and goes, depending on my weight. And I have lupus and Sjögren’s syndrome. I’m also feeling a little overwhelmed. For example, I’m in a lupus flare now. My sed rate is over 90 and my rheumatologist is now somewhat limited in what she can prescribe. When I was first diagnosed with lupus in 1991 I learned a lot from online forums such as this. Hopefully, you and I can learn good stuff as we figure out our new complex medical profiles.
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Welcome to Mayo Clinic Connect, @lmpa65. Good to hear you have been diagnosed recently so you know what you are dealing with with the severe fatty liver, primary biliary cholangitis and autoimmune hepatitis. That sounds like a lot to contend with.
Hoping that in this discussion you will get to chat with members in this discussion such as @jl42 @elouise @trishwrite1 @mayo99824 and others so they can tell you about their journeys with liver disease.
When will your blood tests occur, lmpa65? If the azathioprine is not an option after the blood test results, what is the alternative for you?