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1/2 Pancreas, 1 lymph node involved. What treatment would be likely?
Neuroendocrine Tumors (NETs) | Last Active: Jul 5 9:08pm | Replies (15)Comment receiving replies
Get a NET Specialist, the single most important thing for you to do at this point. NET is very rare, and many onocologists are not trained on the best care for a NET patient. In our case our original Onocologist, who served in his position for 40 years had a total of 2 cases of NET. We probably owe my wife's life for that referral to a Multi-disciplinary team that includes an NET Specialist. Please make that connection asap, and let us know how we may assist in other areas that relate to our own cases. You got this, and we got you!
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Thanks! Found a NET clinic close to me and have all info written out to drop to my family dr tomorrow. Here we need them to refer us. I’ve also emailed them. Sounds like you were on the ball too! Good for you. I have been pretty on top of all this too. And had some luck. This group/you asking about a specialist. 4 days notice for surgery. Expected it longer. Done Lickety split. Very grateful. All the best for your wife’s care going forward.