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billc1965 avatar

Diagnosed with PMR 16 days ago.

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27, 2025 | Replies (56)

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Profile picture for lucychristine46 @lucychristine46

I don’t understand why a person who has PMR would need to see a rheumatologist
I am on my 3rd time with PMR in 12 years and my PCP advised my care . Took 9 months each time to wean off the predisone

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Replies to "I don’t understand why a person who has PMR would need to see a rheumatologist I..."

A PCP decides to refer patients to a rheumatologist when PMR gets complicated. Some people do self referrals to a rheumatologist that is a personal choice.

Tell us more about 9 months of PMR and being able to wean off Prednisone. Three relapses in 12 years isn't bad. Nine months of Prednisone each time isn't that bad either.

Unfortunately we aren't all blessed in the same way. Relapsing PMR often happens before we taper off Prednisone. Then it relapses again and again and before long we have been on Prednisone for years and years. Typically a rheumatologist steps in to see what else can be done for PMR. The PCP gets stuck with treating the Prednisone side effects.

Recently diagnosed with PMR in May. After months and months of repeating the same symptoms to my PCP. Everything hurts. I wake up 3 times a night in excruciating pain. I was referred to a Rheumatologist who prescribed prednisone and it is like a miracle drug. My correct diagnosis and treatment took a Rheumatologist.