Incontinence during/following treatment?

Thanks. You are the first person I’ve come across since trying to spread the word. I wish more people were given this option when discussing the AUS and the Sling. The other non-surgical options like external catheter or multiple pads a day are untenable IMO. Sadly it wasn’t any of my doctors who informed me.
I’ve heard the cautionary warnings. They may be valid if clamped to the max and probably also the caution may be to be on the super safe side to prevent inury, and to avoid liability, not unlike the statement that comes with investments that “past performance does not guarantee future returns.”

Anyway, I headed the caution by very gradually extending the time worn and making sure it’s not ratcheted up too tight. I also put a thin piece of rubber to pad the bottom part that hits the urethra in order to push on that more without putting more pressure on the top where the blood vessels are. I use a pad a day expecting some leakage. I’ve been at it for three asymptomatic years. After the first year my surgeon went in there to do a balloon dilation and he found nothing amiss. I feel comfortable continuing as is. If anything unfortunate occurs I’ll report it on this blog.

Actually never heard of yogurt causing constipation; actually its probiotics stimulate bm’s…
But in the case of dysentery, you were actually fighting the bad gut bacteria with ‘good’ lactobacillus and other strains.
Even today in cases of intractable C. diff, they are doing fecal transplants ( via an NG tube, thank goodness!) to overwhelm the clostridium running rampant in the gut. Human Yogurt😳

For diarrhea "binding" things can help. White rice can help and do not wash it before cooking since that "powdery" white stuff is actually pulverized starch and it is what helps the most. If you do not like white rice, try drinking rice water (water in which rice was cooked), and do it 3 times a day. For some people fiber can have anti diarrhea effect, like regular Metamucil but dilute it in little bit less water. Calcium supplements can be very "constipating" so perhaps you can try them also but start with low dose, of course, and see how it goes. < 3

Yes, it is how yogurt and other fermented things help and as you said only when diarrhea is caused by bacteria or virus or bio-flora disbalance.

BUT, you know, now that I think about it, perhaps radiation can kill local flora in guts !!! Why not ? Maybe adding probiotics can help balancing guts and lower inflammation. But in that case I would stick with supplements since some people might be lactose sensitive etc.

I actually thought about that as well during treatment. But I could find nothing definitive about whether the gut flora were killed or not.
But some members of this forum have had such incredibly bad diarrhea, it IS almost like a C. diff infection.
But the radiation,protocol from Sloan actually prohibited probiotics or yogurt due to fermentation and gas….can’t win!

Drank 1 cup of coffee plus 34 oz Smart Water during daily IMRT treatments. Stopped to go #2 on the way to the hospital at my office (near the hospital - approx. 45 minutes drive) and always had a 100% full bladder during radiation treatments. Coffee did the trick - laxatives were useless. I did also have a Space Oar gel in place.

Happy to report virtually no post treatment bowel side effects but some continuing to decline urinary incontinence that has progressed from needing to urinate hourly to now going on 2.5 - 3 hours

Just got my first PSA post radiation, HDR and six months Orgovyx. My PSA went from 7.1 to 0.04 but may be influenced by Orovyx as I am on my last month of treatment. Will be greatly relieved if my PSA remains this low for a few months after the hormone therapy

I kept thinking about the precautions you outlined about the clamp and I want to thank you for bringing it up. I’m being more diligent about voiding more often so I will change the location each time. Appreciate it.