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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
I would contact the PICU you were in. I have been retired for a while, so I don't know if the PICU I work at had such a program. I know the adult ICU at the same hospital has no aftercare program. It's a real shame that no all hospitals recognize the stress involved an ICU stay no matter the age of the patient. I have tried and tried to the hospital officials where I once worked about an aftercare only to be shot down and told I didn't know what I was talking about. It's so frustrating. I go to personal therapy - one on one. That helps. But I know the same mistakes with patients must be still happening with patients every day.
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The PICU invited our family to a PICU retreat where we can share our perspective and be with some of the providers who were caring for our baby. I think that will be a good step in helping to process some things. Thank you for your efforts in trying to establish an aftercare program at the hospital you used to work at. The support DURING our stay was incredible, and we continued to have some contact with individuals. However, I think a formal support and at least opportunity to talk to a social worker about grief, trauma, death of other kids...would be invaluable. Hopefully awareness is being raised and change can happen. I had no idea that others dealt with these issues until I found this Mayo Clinic group! I thought I was crazy and the only one struggling! The weird thing is no one even asks how that PICU stay and my baby's near death affected me. I guess people just don't think about it.