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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
@rosemarya Thank you for your kind words and thoughts. It feels comforting to know that other people understand. When faced with my own mortality I am forever changed. I will look at other conversations including depression, on this Mayo Connect. All of my ICU Staff were lovely. So I’m chalking it down to maybe knowing too much. The PA that sent me home misdiagnosed to die, I often wonder what purpose I still have here. If I didn’t make that decision to get a second opinion, I wouldn’t be here. I have so much anger for the PA that misdiagnosed me and it was neglect. I asked if the medication was causing my symptoms (Steven Johnson’s Syndrome), she said to keep taking it. It’s hard to have faith in a system that fails so often. I’m still trying to understand, and rid myself of the anger and confusion. It seems to come in waves. Thank you for your kind and thoughtful reply. -Kay
Replies to "@rosemarya Thank you for your kind words and thoughts. It feels comforting to know that other..."
I would recommend trying to find a therapist. That has helped me the most. But if the first one you see doesn't 'click' don't hesitate to move on. The first one in I saw tried to convert me to her religion. That was a big no for and highly unethical. I could have reported her. But I just moved on instead. I did find a really good one instead. I would look for someone who treats PTSD.
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I understand your anger. Five years later, I still have anger that the ICU staff allowed a male stranger in my ICU room while I was in a coma bc he said was a pastor. He was not. They didn't ask my family. He was an intruder. I'm terrified of hospitals now. It was against JCAHO and I filed a complaint against the hospital. JCAHO agreed with me. Worse part I used to work for that very hospital! It was a huge violation. I'll never know what he may have done. So you have every right to feel angry. I tell everyone you gave to be own doctor. And you have beware of hospitals. You are not safe.