@deltakay, I want to introduce myself and say "Welcome" to Connect. I spent a brief period of time in ICU 10 years ago. It was difficult for me afterwards as I had memories and memory gaps that taunted me. For a long time, I had difficulty even talking about it, and some friends/family would say that I shouldn't let it bother me - that I should just get over it. Your experience is real, and I understand the feelings that you are having.
I want you to erase the notion that you are "not normal anymore" from your mind! There is no question that you have had more than your share of difficulties, and both you and your family are facing many challenges. The determination and goals that you had prior to this event show what kind of inner strength that you possess. Many folks who have encountered barriers like you are experiencing say that time helps. And they develop a "New Normal" that involves learning to live with whatever limitations are and continuing to be proactive in care and treatment.

I hope that some day you will be able to share your new normal as an example to others who are like you.
You mentioned seeing a hematologist, as well as other health conditions. I want to encourage you to look at the discussion groups on Mayo Connect, and to meet others who are facing some of the same health issues. As a member you are invited to participate anywhere. https://connect.mayoclinic.org/groups/