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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@deltakay

Hello, I happened to come by this group researching PTSD post ICU. I’ve had two ICU stays, the first of which encouraged me to get a job in the ICU as a CNA and eventually be an ICU nurse. I have lots of experience working with ICU patients. I’ve wanted to be a nurse since getting my nursing assistant certification in 2005. After my last ICU stay I no longer have any desire to enter a hospital. I’ve been diagnosed with PTSD, Major Depression, Anxiety, Panic Attacks, and Agoraphobia. This is devastating to say the least. I have worked in a state psychiatric facility, I have a position at the hospital currently which I am on leave from as a float pool CNA. I am six months from hospital discharge. I see a psychiatrist, therapist, and my normal doctor. I feel stagnant. I was on short term disability my last check was in December. I have been denied long term disability, I’ve hired an attorney to contest. All of my providers agree that I can’t go onto my position at this time. I am on four daily medications. My first ICU stay was a partial colectomy with a colostomy. I was there for 12 days and at 29 years old handled it like a champ. I have the reversal surgery a few months later and coped fairly well. This last ICU stay was due to a medication to stabilize my mood swings called Lactimal. I had a severe allergic reaction to this medication and went to the clinic and was told by the PA to keep taking the medication because I had an influenza like illness with a rash unspecified. Well with fevers of 103 for two more days I decided it was time for a second opinion. I went to the ED and was transferred via ambulance to a level 2 trauma hospital where they called a rapid response code, which is all too familiar for me and I don’t remember much more. I had a bone marrow biopsy, blood transfusion, and all sorts of tests. Looking back I should’ve advocated for myself more. I’m angry that I am not normal anymore. My family is suffering, I’m 35 and supposed to have applied to the RN program. Instead I keep replaying every minute of that second hospitalization in my brain. I have dreams, and nightmares. I feel like a failure. I don’t like to leave the house and I don’t know what I’m going to do with the rest of my life or when I will start feeling better. I should note that my hematologist’s diagnosis was SIRS. Thanks for listening.

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Replies to "Hello, I happened to come by this group researching PTSD post ICU. I’ve had two ICU..."

@deltakay, I want to introduce myself and say "Welcome" to Connect. I spent a brief period of time in ICU 10 years ago. It was difficult for me afterwards as I had memories and memory gaps that taunted me. For a long time, I had difficulty even talking about it, and some friends/family would say that I shouldn't let it bother me - that I should just get over it. Your experience is real, and I understand the feelings that you are having.
I want you to erase the notion that you are "not normal anymore" from your mind! There is no question that you have had more than your share of difficulties, and both you and your family are facing many challenges. The determination and goals that you had prior to this event show what kind of inner strength that you possess. Many folks who have encountered barriers like you are experiencing say that time helps. And they develop a "New Normal" that involves learning to live with whatever limitations are and continuing to be proactive in care and treatment.

I hope that some day you will be able to share your new normal as an example to others who are like you.
You mentioned seeing a hematologist, as well as other health conditions. I want to encourage you to look at the discussion groups on Mayo Connect, and to meet others who are facing some of the same health issues. As a member you are invited to participate anywhere. https://connect.mayoclinic.org/groups/