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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@rosemarya

@janegigi, I want to extend my Welcome to you. I am happy that you have found this topic on Mayo Clinic Connect. I do wish that there was something that could be done to turn back the clock so that you would not have had this experience. I don't understand how you were placed in such a situation. I have had several hospital experiences, and even in the best of circumstances, it can be a frightening and eerie place. I have also been in situations where there have been 'less than pleasant/qualified" caregivers and staff. I commend your daughter for calling this to the attention of a responsible staff member where it was addressed. I hope that you can find at least a small sense of gratitude that someone, in the future, will benefit from this. (Not much help, I know).
I have no experience with what you have gone thru, except one time when my son was not feeling confident about the night nurse, and so he decided to stay with me thru the night. I was also fortunate that my family was available afterwards to tell me what what they had observed during my times of confusion and this has helped me to sort out the blanks in my memory. I don't know what to say or to think about your situation, but I don't think that we can ever just forget things like that. I am glad to hear that you are making some improvement, and are pleased with your therapist and are seeing some results. It sounds like your husband is willing to stand up for you and be at your side. I hope that you will continue making progress, and begin to mingle with a new group of friends - who accept you for who you are.

You said that you had recently retired, so will you be able to revisit any of your original retirement plans? Do you think you can continue to look ahead to building some better memories and experiences for yourself and for your family?

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Replies to "@janegigi, I want to extend my Welcome to you. I am happy that you have found..."

My husband had triple bypass three month before I became ill. We had planned a big trip just before our illnesses, but that was shelved. We have gone on some short trips with our children. We are lucky to have all three of children living in the same town with their spouses and six grandchildren. I did return to my Girl Scout volunteering and with another volunteer we made a 1918 replica Scout uniform for the Edith Bolling Wilson museum in Wytheville VA. You can google it and see it. Not too bad for someone whose hands were paralyzed at one time. It was good therapy for me. I have been to see it. It's two hours from my home. She was the wife of President Wilson. I also have dressed several dolls for Girl Scouts, and some other charities to donate for auctions. I still do some wildlife photographer as a hobby. I live on a wildlife preserve. So I'm not stagnating, it's just getting doctors to listening. I've doctors tell me I wasn't really ill even though they can just look in the computer, I had a nurse tell me my illness was caused by the devil, I had a therapist try to convert me to her religion, I had a resident tell me I was just hallucinating. A nurse told me I was overreacting. Another told me to 'not sweat the small stuff' like my illness was small stuff. Insert big eye when I really want to scream.