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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@menville

@sacker I’m sorry 😐 you’re experiencing so much but as everyone has already validated for you, YOU are absolutely right in taking the best therapeutic steps for you to move forward. I am living proof that anyone is diagnosable EVEN if the proverbial “they” don’t know who, what, when, why, where life and traumatic events have taken you! I too deal with maintaining a good mental and physical pain that requires a. A listening hear b. A vote of confidence c. Caring that goes Above and BEYOND the call of duty in these extremely stressful times and d. Discovering these forums and helping people like ourselves persevere.
I had several “change who you are” religious excursions and it was scary when I looked back at my medical records to see someone actually wrote something in MY CHARTs that I knew in my heart was someone else’s opinion (caretaker, home-health-aide, et al). Stay TRUE to yourself and be careful!! Lots of great things heading your way.....
Candi

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Replies to "@sacker I’m sorry 😐 you’re experiencing so much but as everyone has already validated for you,..."

When I first woke up from the coma, I had no idea where I was or what had happened to me. I couldn't move bc I was paralyzed. I could not speak bc I had a trache. People were around me but no one was talking to me. I could hear religious music which I would never have listened to. I thought I'm in a funeral home. These people think I'm dead! I knew I needed to make them realize I'm alive. I tried to move, but I couldn't. I could hear them say was going to die. I cried. I thought maybe if they see my tears they would know I'm still alive. I would see men in suits wheel bodies down the hall. I later learned that the death rate in ICU was high from the flu which was why I was there. As I began to recover, the staff would tell me. Everyone your age had died. That didn't help at all. Were they trying to make me feel guilty? At one point I had an MRI thoughtless staff put the panic button in my paralyzed hand. I had regain some use of one hand, but her thoughtlessness was horrid. I panicked. A cage was placed over my face. When I was taken out, but the cage wasn't removed. I pounded on the cage with the one limb I could now move. I could hear the the MRI staff laughing and say you're going to hurt your hand. I was sweating profusely. I was in a panic and mouthing the word HELP!! Finally when a staff person removed the cage removed the cage, he said in a concerned voice - get her nurse ! Get her nurse!! I don't know what I looked like but it must have been bad. My kind nurse took over but bc of the trache I still couldn't tell her what had had happened. My doctor tried to tell me things that happened were hallucinations, but the worst things that happened were not hallucinations. It was the cruelty of the staff. I can not be around religious music. The staff tried to convert me, pretty bad since I was in a public hospital. That should not have happened. My family asked them to stop playing that music and when they would return it be playing again. They were determined to convert me, even through rehab and my follow-up care. I'm now terrified of hospitals and doctors offices. I have had panic attacks at both. I never had happen before. I retired from working at hospitals. I knew things were supposed to be better than the way I was treated. Especially since I was hospitalized in the one I had work at. I even remember seeing many familiar faces.