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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
@rckj
Thanks for sharing your update. You really got more than you had anticipated, even the 'cold' weather was unexpected. I am thankful that you are home now. I realize that the one step at a time phase is a real drudgery. I send you my hopes and prayers that the steps keep on moving on a level path.
I am all in favor of crying, too. Sad tears, frustrated tears, confused tears, and even an occasional happy tear that can will creep in now and then. Small moments of hope and happiness are worth looking for. I decided to write them down, so I could be reminded of them. My intent was to find one everyday. However, as time passed and I began looking, I found more and more 'blessing' moments especially in the tiny things that occurred. If you need a way get thru the drudgery, I offer keeping a blessing journal or a progress journal as a posibile diversion.
I love Colleen's crazy idea! I was teary eyed as I read about your experience. You are a blessing, by being you. Your energy is powerful.
Replies to "@rckj Thanks for sharing your update. You really got more than you had anticipated, even the..."
@rosemarya @colleenyoung I haven’t lost the good feelings of what my husband and I created, with your help, but I’m afraid this is round two of this episode. In ICU with sepsis of unknown cause and adrenal shock, unstable Coumadin levels. I am still quite ill so hope this is coherent. It’s 3 AM, EST, wakeful and ill. High dose antibiotics, supportive measures, etc. You know what it is like. I’m scared, sent husband home to get some rest, I’m reasonably stable, I think. Getting lots of TLC from staff but can’t help staring at all the emergency measures around me, especially intubation tray. So emotionally tired but primarily scared. I feel like my body is betraying me. I used to be so physically strong, worked out every day. Maybe I thought I was invincible. Seems silly now as none of us are without vulnerability. Trying to keep reviewing in my mind the wonderful dinner and music night with my husband and all your support. Will hang on, somehow. Life, my husband and I need each other. All my best, Rhoda.
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@rosemarya so happy to hear from you. It’s been a rough ride, scary, but I am still numb. Need to cry, but it feels “stuck”. Colleen’s (@colleenyoung) idea made a huge difference in my husband and my life. It felt like returning to normal for a bit and enjoying happiness with each other. We are still lighter and happier than we were, which helps so much. Thank you for what you said about being a blessing and having powerful energy. It feels like ,with all of this, I forgot my strength. Running ahead with Colleen’s idea was like life flowing through my veins again! Thanks Colleen!!! Thank you too Rosemary! I have a long recovery road ahead and the new risks and medications will be lifelong. But, I am alive! It was a close call. Scared a bit as I say this right now but I hope for a lot more time ahead with my husband, my family and friends. I hope so with all my heart. Thank you both. All my best, Rhoda.