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Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?
Sarcoma | Last Active: 4 days ago | Replies (125)Comment receiving replies
Diagnosed almost 5 years ago and told it was rare and incurable. Tumor was in my thigh, barely visible bulge with no pain, small metastasized lesion on my lung. Happy to tell you that it has shrunk by 70%, after chemotherapy and immunotherapy. No radiation, no surgery. Docs will never say it is in remission - that doesn't happen with UPS. I give a lot of credit to being mentally strong, and I am a give-me-the-facts type person. So, stay positive and resilient.
Replies to "Diagnosed almost 5 years ago and told it was rare and incurable. Tumor was in my..."
No_one_knows;
*****Just like @gemmalt I am curious about which chemo and immunotherapy you were treated with.*****
I have stage 3b UPS. There is a small 3mm spot in my right lung; a possible met. When it was first seen Dec 2024 it was 4mm. It is now 3mm. (Jul 2025.) I am receiving pembromizulab (Keytruda) once every 3 weeks, but my oncologist said that pembro doesn't usually cause mets to shrink... I had surgery (before pembro) and radiation treatments (while also receiving pembro treatments). I had breast xcr 20 years ago and received chemo, which now limits how much more I can receive. (Same chemo drugs for UPS that I rec'd for breast xcr.)
I hope all is going well for you.
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Which chemo please?