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DiscussionDiagnosed with PMR 16 days ago.
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 12:36pm | Replies (56)Comment receiving replies
Replies to "Started on 40 mg and then went down to -0- within two months. I do take..."
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within a month or two for some other autoimmune conditions. I couldn't taper that quickly after I was diagnosed with PMR. It was probably a combination of many things but it took me 12 years to taper off Prednisone after PMR was diagnosed.
Eventually, I was able to taper off Prednisone. After Actemra was started for PMR, I was able to taper off Prednisone again going from 10 mg to -0- in a year. Then I had a flare of one of my other autoimmune conditions and I needed 60 mg again. Fortunately the other condition was the one I could go from 60 mg to -0- in a month or two to put it back into remission.
I needed to work around the problem with adrenal insufficiency. After almost 30 years, I'm so happy and grateful to be completely off Prednisone for almost all of the past 5 years.
I love your advice ... especially the last part.
"Eat extra healthy, no alcohol, light exercise when possible, reduce stress as much as possible and get out and soak up some vitamin D. STAY POSITIVE!"
I like soaking up my vitamin D again too. My skin was too thin when I was on Prednisone. I only do a monthly infusion of Actemra now. My rheumatologist says she will prescribe something else for pain if I need it but I don't even need tylenol.