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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
@rckj, wow Rhoda there's a lot in that paragraph. Imagine the medical education you've given the staff and clinicians at your local hospital. Have you added that to your résumé?
Your experience would be most welcome in the Endocrine System group https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/
Here are some specific discussions where your participation would be most valuable. You may find others too.
- Possible Adrenal Issues https://connect.mayoclinic.org/discussion/possible-adrenal-issues/
- Adrenal crisis without cause https://connect.mayoclinic.org/discussion/adrenal-crisis-without-cause/
- Addison's Disease: Tired of being tired https://connect.mayoclinic.org/discussion/tired-of-being-tired/
Fellow Connect member @kdubois shares her story about genetic testing here:
> Learning to Trust Again – My Journey with Drug Intolerance – Experts by Experience https://socialmedia.mayoclinic.org/2018/05/04/learning-to-trust-again-my-journey-with-drug-intolerance-experts-by-experience/
I'd also like to introduce you to @dawn_giacabazi. If your paths haven't crossed yet, it is time they did. Dawn, too, has adrenal experiences. I'm certain their are differences, but also common experiences to share and support.
Replies to "@rckj, wow Rhoda there's a lot in that paragraph. Imagine the medical education you've given the..."
@rckj Hello please accept my apologies for the delayed response. @colleenyoung
@rosemarya thank you for the tags!
I have tried my very best to catch up on all the thoughts and concerns.
As you have already highlighted any and all Adrenal issues are complex and essential to survival. They are the mother board that controls our response to all situations. Most importantly our fight or flight response. Just like all hormones they rise and fall throughtout a 24 hour period. I have no doubt you will find great comfort in Mayo Clinic. Is this your first trip to Mayo and the endocrine department?
I am followed by Dr. Schwartz and he is amazing!
I do not have Addison but my Adrenal produces to much aldosterone.
Prayers for safe travel and presence of calmness.
Dawn
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@colleenyoung hope it wasn’t too much information! So funny the thought of adding it to my resume but truth in it! The local hospital has told me that it has been an education for them and they have responded admirably. At my sickest, early in each episode, there are often staff with me at all times or very close by. They reassure me often that I will get through. Such a relief to my husband and myself! I worry for my husband who has often heard the words “it’s touch and go”. But we are hanging in there through this together and I am fortunate for that.Thank you for all the resources and I would love to talk to @dawn-giacabazi re: our related experiences. Should I just write to her and introduce myself? Thank you for all your support. We fly to Mayo on Monday. I will try to stay in touch through the whirlwind of appointments! Your support has lifted my spirits and is precious to me. Thank you for your kindness and helpful information. All my best wishes, Rhoda