I was originally seeing a general cardiologist when diagnosed with an AAA, but through my own perseverance, I found a cardiologist that specializes in genetic heart issues (my 4.0cm AAA is most likely hereditary since my brother had an AAA and there are lots of deaths at young ages due to heart ailments in my father's family). The info and treatment has been like night and day between the general cardiologist and the genetic cardiologist. A subsequent scan found a dilation on my celiac artery which sent my anxiety into a tailspin worrying about other aneurysms and started a conversation with the genetic cardiologist about a possible connective tissue disorder. I have since had a brain scan and full abdominal scan to rule out other aneurysms. Thankfully I have insurance that does not require a referral to see a specialist so I was able to see the genetic cardiologist without a referral.

I have not seen a surgeon since my genetic cardiologist seems to have everything under control. He said he will want me to see a surgeon if/when my AAA is 4.5cm due to my family history and possible connective tissue disorder. My theory for not seeing a surgeon now is that I may not need surgery for may years, and if I see a surgeon now, there is no guarantee that the same surgeon will be practicing at an office in my insurance plan when I'm in need of surgery. Of course I will definitely continue seeing the genetic cardiologist on a regular basis.

In my humble, unprofessional opinion, you need to see someone ASAP who is highly knowledgable in genetic heart issues and connective tissue disorders.