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← Return to Post-Intensive Care Syndrome (PICS) - Let's talk
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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: 12 hours ago | Replies (601)Comment receiving replies
One of the many blessings of being a part of this online group is that, as a critical care practitioner, I learn from each and every one of you with every message I read. It has directly impacted the way I care for people at their bedside - and I am so grateful to each of you for that. @laura1964 , you mention that you had wished that that hospital had given you more information "and after support" following critical illness. Are there specific suggestions that you may have thought of for the after support? Many organizations are exploring starting Post ICU clinics, services, etc., but knowing the exact needs and expectations that the returning patients and families might have has been an ongoing challenge. Your insight is very valuable!
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Annie, one of the problems I’m having with my husband is nutrition. He has CKD stage 3 so e have to watch his protein, potassium, phosphorus and sodium intake, he lost 23 lbs and a lot of that was lean muscle as I’ve read happens to a lot of folks. The problem is not to just gain weight to get stronger but LBM is so important not to just gain back fat. I have read plant protein is better for folks with CKD but I’m not sure if that’s true and several articles I’ve read suggest 3,000 to 5,000 calories a day to regain strength and endurance, with great percentage being protein and healthy fats. Most of the discharged ICU patients are sent to inpatient rehabs and later home based rehab programs but we don’t get guidance about nutrition and most primary care doctors are not familar with the dietary needs of PICUS folks. I’m sure there are others with specific dietary needs, diabetics and others I feel is a need for after support