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@rckj

@andreab It’s been awhile since I’ve been on line. I’m not sure I am doing it right but I hope this goes out to all, those I’ve talked to and those I haven’t. I’ve had the usual illnesses for me, pneumonia, sepsis, delirium and adrenal shock (Addison’s Disease), with multiple ICU admissions. After many contacts with the Mayo Minnesota team, I am coming to Mayo from the east coast in 10 days, to be re-evaluated and hopefully find some solutions. My husband is coming with me. This is my second visit, last visit was August, 2017 although there has been ongoing consultation through the portal and my local doctors. As always, I am anxious and scared for no particularly good reason. My last visit was positive and enormously helpful. I guess I am reaching out for support as it’s been a rough ride. The goal of the consult is to find a way to stop these repeated episodes so I can have more of a normal life. I send my good wishes to all and hope to be in touch. Thank you, Rhoda.

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Replies to "@andreab It’s been awhile since I’ve been on line. I’m not sure I am doing it..."

Rhoda, I can understand that, despite previous positive and helpful visit, that you're still anxious and scared about your upcoming visit and re-evaluation at Mayo, Rochester. It's a big journey from the east coast and you're searching for answers. That always bring apprehension as well as hope. Do you know about the Concierge Services at Mayo? It is a free service that you can use prior and during your visit to help you find services, such as accommodations, transportation and things to do. You can contact them by email, phone, chat or in person during business hours.
Ways to Contact Mayo Concierge Services
* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
* Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

@rckj do keep us posted.

@laura1964, I add my welcome. Thank goodness for your getting a proper diagnosis. Your sharing your story here will certainly help others too.