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Younger than usual with severe osteoporosis
Osteoporosis & Bone Health | Last Active: Aug 20 1:41am | Replies (84)Comment receiving replies
Hello, I'm new to this forum and only a couple years since my diagnosis. I'm now 66 years old and before this surprising diagnosis I took no medicines. I was advised to get a DEXA only after a fracture in my back. My original T-score was -5.5 in Lumbar spine, -3.8 Femoral neck, -3.9 in hip-3.6, pretty severe I know!
I have just finished a year of Evenity. I had no side effects, and my new scores are Lumber-4.8, Femoral neck -3.6 and hip -3.3.
My doctor wants me to start Prolia, but her statement "for the rest of your life" was really is concerning. I'm trying to do all the right things with supplements and working out, but I know I will have to start something soon to lock in gains and hopefully avoid more fractures. Is Prolia my only option, and will it be for the rest of my life? I appreciate any insights and advice, Thank you.
Replies to "Hello, I'm new to this forum and only a couple years since my diagnosis. I'm now..."
See if you can stay on a vanity for another year or ask for Tymlos or Forteo ( generic is called teriparatide-) They build bone. You stay on them for 2 years, then go on something else. You are not going to get the same bone building effects from prolia. Im afraid of prolia because of potential osteochronosis of jaw and fractured of the femur. But everyone is different, I wish doctors understood that.
I thought my t score was bad in my spine of -4.6 I went on Evenity for one year and my T score is now -3.3. My endocrinologist then put me on Prolia. I was so against going on it from all that I read but it helps to build more bone density . I have had 2 injections so far and will do another DEXA in August. Will then decide on going on Reclast to hold the gains.
@dgtex
Hello:
Noticed your T scores which are similar to mine.
Have similar concerns on taking meds the rest of my life.
I have avoided so far, taking any, Evenity was
strongly offered to me.
A year ago I had a spinal xray which showed an old fracture -
which I didn't feel.
The past year I watched my diet carefully: dairy/protein
nothing special - (I am still trying to decide about collagen
and possibly creatine)
Exercize if you can - start from where you are -
and build up slowly and safely..
With weights/resistance bands and diet
my T scores improved
5.6% in spine and 6.4% in hips
that was the rheumatologist's reading of the recent
Dexa.
Have you had a TBS. It's difficult for some to get
this, depending on where you live.
Please read all the literature about Prolia before
deciding.
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Hi @dgtx. Congratulations on your gains after Evenity! Did you have a TBS as well? There are several medications that are commonly prescribed after Evenity. Did your doctor not mention them at all? Is she a specialist in osteoporosis? Sometimes patients may have comorbidities that preclude certain medications, but you mentioned not being on medication prior to Evenity so I'm guessing that's not the case for you.
There is a lot of information here regarding medications after Evenity. You can enter your inquiry in the search bar on this website. Hope that's helpful!
Best wishes to you moving forward.