I was diagnosed with stage 4 metastatic prostate cancer on February 28, 2022. I started going to the Mayo clinic in April. I was not a candidate for a prostatectomy, but I did need a TURP (Rotorooter). Because I wasn't a candidate for surgery I was referred to Radiology.
I was scheduled for radiation treatment and started on Firmagon, then later Lupron on May 3.
In June I had a TURP. The next day was started on Xtandi. Stayed on both Lupron and Xtandi until this past May. So I was on an hormone for 3 years.
It has been an interesting three years.
I was already a big boy but gained weight, lost the hair on my chest, belly, back and armpits. My boy parts atrophied, I was tired and my body and joints aches.
No one is the same as anyone else. My suggestions to anyone starting ADT/ARI ;
Do not be afraid to seek mental health help,
Lose weight, talk to dietician who understands hormone therapy,
Get exercise walking does help, I didn't do resistance training but should have,
Your relationships may change, don't let go of them,
Meditate, the form is up to you, my choice is faith based, but doesn't have to be,
Sounds cold but, this shit sucks, get over it and move on. You can and you will survive.
In the two months that I've taken a break from treatment if gotten a lot of energy back, I'm not as fatigued as I was. I don't hurt as much, my joints in particular. I'm starting to lose some weight, and build back some muscle mass.
One final thought, at the beginning of this I remembered what my grandmother and my aunt used to say every morning, "this is the day that the Lord has made, let us rejoin and be glad in it". My beloved wife had a stencil made of it and it's on our bedroom wall, where I see it every morning. It doesn't say a good day, or a bad day, it just says day. I had to learn that it doesn't matter what the day bring, rejoice and be glad in it. I don't hate the cancer. Because of the cancer I have become closer to my wife, and to my God. I can rejoice and be glad in it, well most of days.
Fred, you have a great attitude. Thank you for the encouraging words. Best,
Phil