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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@laura1964

Hi, I am 4 years post Septic Shock survivor. No one gave me any information when I left the hospital or rehab about PICS. It was a slow recovery and I had many of the symptoms listed. I was diagnosed with Toxic Metabolic Encephalopathy while in the ICU. I had delirium. I noticed many cognitive issues during early recovery including loss of memory and overall cognitive functioning. I feel I am still not 100% as I was before my septic shock, but very grateful to have survived and be as healthy as I currently am. I wish the Hospital would have given me more information and after support. I also was just diagnosed with peripheral neuropathy after trying to tell the Doctor for the past 3 1/2 years that I was numb and cold in my toes and fingertips. I was lucky to have found a septic shock survivors support group and I asked if anyone else had those symptoms. I received numerous responses from other survivors that actually had to have amputations due to drop in blood pressure and vasopressor medications while in ICU. I immediately called my Doctor and he had me come in and finally made the proper diagnosis. I also had acute respiratory failure and required mechanical ventilation for over 2 weeks. I also developed the dreaded hospital acquired infections that made me even sicker. I survived and I am grateful and blessed. I think anyone who goes thru such critical illness understands what a precious gift life is. Thank you for being here.

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Replies to "Hi, I am 4 years post Septic Shock survivor. No one gave me any information when..."

@laura1964, I want to extend a welcome to Mayo Connect. I am happy that you have joined the conversation and have shared your experience. It is frightening when we feel alone with our symptoms, and it is a blessing when we find someone like us. That is why Connect exists - to connect and to share and support others like us.
I commend you for your own self determination to advocate for yourself, thus finding an accurate diagnosis and treatment for the peripheral neuropathy. EVen though my experience is different from yours (liver/kidney transplant), I gather strngth from your experssions of gratitude and blessings.

Laura, I persomally want to invite you to read and/or enter into any of the discussions on Connect. Here is the discussion group for Neuropathy https://connect.mayoclinic.org/group/neuropathy/