← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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Profile picture for surfrmurph @surfrmurph

Hi Lee. For pain I apply a pain patch called Buprenorphine 10 mcg. It’s good for one week and gives me about 70% pain relief. I also take oxy and muscle relaxers for breakthrough pain rarely. I live in Michigan for the summers and Tucson for the rest of the year. I find the humidity in MI is killing me. I take a 40 walk each day with pain. My pain is primarily in my upper back. Entire thoracic spine is fused because of DISH. It’s a nasty disease and at times it’s hard to wrap my head around it. It is now in my ankles and getting worse. Not sure what I’ll do if I can’t take my walks. I’m trying to find a PT who can use some gentle modalities. Not an easy task. I’m also seeing an orthopedic surgeon at U of M in august as I haven’t had any images in three years. I desperately need to lose weight…..big factor is DISH. I hope you have a nice holiday weekend (as much as you are able). I try to keep a positive attitude, but it’s difficult at times.

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Replies to "Hi Lee. For pain I apply a pain patch called Buprenorphine 10 mcg. It’s good for..."

I just got this reply on Saturday July 5th....so if you sent a longtime ago sorry I had not seen it. Thanks for the reply and what you said is the same as I feel.....especially in what you said not being able to wrap your head around it. Also you said you have had it in your ankles and just last week my ankles started to swell and for what reason I did not know...but maybe you are right on about DISH in the ankles and I am going to get that checked out for sure. I too have not had imaging done in over a year and I am going to see if we can do that. Also I am taking 1/2 of an Oxycodone and one tramadol average a day for pain. Thanks for your returning the reply and I pray you get to feeling a lot better! Lee