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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: May 22 3:02pm | Replies (598)Comment receiving replies
Hi @polly08, I'm so glad that you found this group where you can meet others who know what you're going through, like @rosemarya and @muriel66 and caregivers @lupedelarosa12 and @patrassi
Polly, you asked about resources. I suggest you start with the blog posts on the Post Intensive Care Syndrome blog here: https://connect.mayoclinic.org/page/pics/
I particularly like the "Breaking It Down" series that @andreab wrote explaining PICS from prevention to recovery. Here are a couple of blogs to get you started:
> Breaking it Down: Post Intensive Care Syndrome and Recovery - Emotions https://connect.mayoclinic.org/page/pics/newsfeed/breaking-it-down-post-intensive-care-syndrome-and-recovery-emotions/
> Breaking it Down: Post Intensive Care Syndrome and The Family https://connect.mayoclinic.org/page/pics/newsfeed/breaking-it-down-post-intensive-care-syndrome-and-the-family/
I'm thrilled that Vanderbilt had a Post ICU Recovery Clinic and that you have an appointment soon. Don't forget to ask them about support for you, too. This must be all so overwhelming as you help your husband through recovery.
But let's get you some support now by connecting with others here. Imagine I've just poured you a cup of tea. Let's chat. What's your main pre-occupation or concern today?
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Colleen, Hi, thank you for your response and for pointing me to resources I might find help to make this journey a little easier. I guess my main preoccupation would be how to best help him gain lean muscle and strength back, when I read the best way to do this, oral supplements with protein are recommended and his CKD calls for limited amounts of protein in his diet. We are home now and more relaxed and in a better frame of mind but I still get scared that we will experience another set back, there were so many in the hospital. I find it helps that I’m able to focus on regular household chores and I’m not just sitting there watching him 24/7.