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4.5 Ascending Aorta - PCP recommends general cardiology
Aortic Aneurysms | Last Active: Jul 8, 2025 | Replies (14)Comment receiving replies
If your child has Ehlers-Danlos Syndrome, your PCP is off base on saying there is no connection.
Most primary care physicians and many general cardiologists are clueless about thoracic aortic aneurysms.
Replies to "If your child has Ehlers-Danlos Syndrome, your PCP is off base on saying there is no..."
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Make an appt for a genetic test so they can pinpoint if you have EDS which it sure sounds like it! Our fam has many symptoms for Marfans but the test showed LOX defect positive for 3 of us. I went to a genetic counselor at Mayo. It will help to determine your care. 4.5 - 5.0 is criteria for surgery to replace the aorta. Mine is steady at 4.3 so just wait and see. Best to You, Janet