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wellsbjt avatar

kevzara and relapse

Polymyalgia Rheumatica (PMR) | Last Active: Sep 16 4:29pm | Replies (11)

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Wellsbjt@ I am exactly where you are. On Kevzara and have tapered to 4mg. Prednisone. Going to alternate 3.5 and 4 mg. next week. Slight hip pain now. Let's keep in touch about our progress weekly. I'm a 75 yr. old female diagnosed in April. Thanks.

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Replies to "Wellsbjt@ I am exactly where you are. On Kevzara and have tapered to 4mg. Prednisone. Going..."

Yes, let’s stay in touch. Good luck with your taper. I am still holding at 2 mg. Fatigue has improved but I have not been able to shake shoulder and forearm pain that appeared when I tried to reduce dose to 1.5 mg. Very disappointing. I celebrated the 1.5 mg dose thinking that I was almost off prednisone.

I’m right there too! I started Kevzara in February and I’m down to 2 mg and rheumatoid wants me off prednisone in the next week or two. Hip pain has just returned though not quite as bad as the pain in the beginning. I just had to put my dog Ive had for ten yrs down last week and I think the stress is messing with my cortisol needs. i’m also wondering about adrenal insufficiency added to this mix. Anybody have any experience with this?