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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: Sep 24 11:31am | Replies (211)

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Hi Melinda,
I have such a fear of the unknown and once I started treatment it became easier. What you read is not necessarily what will happen to you. I was all prepared for neuropathy and purchased items that would keep my hands and feet cold. I think I used them once during chemo and gave up on them. Turns out I didn’t get neuropathy anyway but, not saying that you may get it. I just saw my radiologist oncologist today for some issues I am having. She is a wonderful doctor and very caring. I know she is looking out for me and doing everything she can to help me recover. Having a doctor that relates to you is very important and being able to find someone to talk to about your anxieties is a huge help. I can relate to your anxiety and since vulvar cancer is considered rare there is not a lot of information available.

I had breast cancer 25 years ago and began volunteering as peer support. It then lead to volunteering in a cancer center talking to current cancer patients up until COVID. I stopped when I got vulvar cancer focusing on myself. I would be very happy to speak with you. Not sure how we can connect but i think it easier to talk via phone but not sure how we can accomplish that. If that interests you, we can try to work something out. We can also still communicate via this website. You are not alone.

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Replies to "Hi Melinda, I have such a fear of the unknown and once I started treatment it..."

@tilli @melindab2 If you would like to have a private discussion in which you exchange personal ways to connect with one another you can use the personal message (PM) on this page.

There are two ways to PM.

1) Click on the @name at the top of the post you are reading for that member. This will take you to the member’s profile. Under the member’s photo (or where the photo would appear) you will see an envelope icon and “Send Private Message”. When you click on the envelope icon you will be taken to the PM page where you can type your message.

2). You can also go to the right hand top of this page where you will find the envelope icon. Click on this envelope icon and again you will be taken to the PM page. If you take this route you will need to type the @name member yourself in the To: section of the message.

I’m pleased that you have found support with one another and are interested in connecting more in the future.