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← Return to PCP advising fast taper
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Polymyalgia Rheumatica (PMR) | Last Active: Jul 7 6:36am | Replies (28)
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@dadcue I’m going to ask my pcp about biologics. She has never mentioned this. I’m wondering if there are actually people who are cured permanently of PMR or it’s just in remission or it wasn’t the correct diagnosis in the first place.
Replies to "@dadcue I’m going to ask my pcp about biologics. She has never mentioned this. I’m wondering..."
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I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab) was tried, I was off Prednisone in one year.
Actemra is FDA approved for GCA but "should work" for PMR. The biologic that is FDA approved for PMR is called Kevzara (sarilumab).
I'm an actual person with PMR and treated with Actemra. I have been off Prednisone for almost 5 years. My inflammation markers increase when my monthly infusion of Actemra is held for too long. I don't have any sudden relapses (flares) anymore. My symptoms are well controlled.
Many of my side effects from being on Prednisone for 12 years are improving. I don't seem to have any side effects from Actemra. I can't say Actemra "cured me." However, my rheumatologist says I'm "better off" being on Actemra rather than Prednisone for the rest of my life.
I think only a rheumatologist would consider a biologic to treat PMR. Sometimes, I have asked my PCP a question about Actemra. My PCP says I need to ask my rheumatologist because biologics are "out of my PCP's league."