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← Return to 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?
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1/2 Pancreas, 1 lymph node involved. What treatment would be likely?
Neuroendocrine Tumors (NETs) | Last Active: Jul 5 9:08pm | Replies (15)Comment receiving replies
I would recommend trying to consult with a net specialist to ensure that you get the proper follow up and/or treatments. General oncologists and other doctors often don't have the required knowledge to properly treat this disease so it really does require a specialist approach if at all possible. You can search for one by state at
https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/
Or
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Its also important to learn as much as you can about nets and the available treatments. This will help guide you in your discussions with your doctors and help you to be your own strongest advocate, which is very important. Those sites that I noted have alot of great information information, along with Mayo's site and also
http://www.netcancerawareness.org
Have you had any scans? MRI of the abdomen and pelvis or GA68 pet scan?
Replies to "I would recommend trying to consult with a net specialist to ensure that you get the..."
Yes. I’ve had a few. CT and MRI. Abdomen, pelvis and chest. . My next one is September. I will be followed for 5 years now, every 6 months.
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Thanks! But I’m not American. I think I’ll do a bit more research. Good idea!