laura1970: I'm so sorry that you are experiencing this. I totally understand what you are experiencing. I have had Adhesive Aracnoiditis since 1997. As you know, it is a very rare condition and it's progressive and without any current or even recent clinical trials. So, the only thing that I can offer you that has helped me to find ways to embrace all if the positive people and things in my daily life is to start each day and end each day with what I call "An Attitude of Gratitude ." As I start my day, or during the night when I can't sleep, due to my 24/7 intense pain along all 3 levels of my spine, I think about who I'd like to contact as the day unfolds and I think of what I'd like to doing the coming day. Then at the end of each day, I go over the day in my mind and in my heart to give thanks for the people I interacted with that day, what I've done in that day, plus giving thanks for our cat and for Mother Nature and all of the various birds, squirrels, chipmunks, and a host of other animals the fish in the Koi Pond that I can visit with the help of my wheelchair. While I am not negating the 24/7 effects of my Adhesive Arachnoiditis, I am not letting it close out my being able to enjoy so many positive people, and things in my life. I hope that this is something I hope that this will be helpful in your day to day life too.
I will pray for you each day laura1970.
With peace-filled wishes,
mmata