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David Rich avatar

Undiagnosed neuropathy and weakness

Neuropathy | Last Active: Jul 4 4:32pm | Replies (26)

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Profile picture for moorethrpy @moorethrpy

Thanks for taking the time to reply. Such a mysterious and dreadful condition. I am taking EB-N6, a prescribed vitamin B formula that was developed for diabetic neuropathy. It insures the correct dosages of Vit B 6 and 12. Prescribed by my podiatrist who sees a lot of neuropathy in his practice. I take no other B formulas or anything containing B. I also take HMB+D3...for muscle/bone. That's it. Oh one more at night. Magnesium Glycinate to help with severe foot cramping. I stopped two meds; atorvastatin and hydroxychloroquine...at the advice of a really great neurologist I saw at Columbia University, NY. I feel more stable now..of course you never get back feeling. I only have sensory loss; no motor and is mostly in my lower legs and feet. Before, I just felt a constant progression upward. Getting another EMG at Columbia in August. We all need to keep each other informed and keep advocating for research and treatment. If you have CDIP (large axon...neuropathy which I don't have, there is a new very effective treatment; Hytrullo by Vygart. There are very specific criteria for this diagnosis which I don't meet but it is also much more debilitating than our kind. Stay in touch.

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Replies to "Thanks for taking the time to reply. Such a mysterious and dreadful condition. I am taking..."

Thank you! Will do!